The best thing that happened to me during this dumb battle
was my cancer connection group. I have met the most amazing men and women. We
have all formed a bond on various social media sites and consider our
friendship more like a family. Most of these people I have never had any
contact with except on these sites, I won’t meet more than half of them. Yet I
cannot imagine my day without being in contact with them. Some rock Stupid Dumb
Breast Cancer shirts even though they didn’t have breast cancer just to show
support!
I met one lady named Heather Owens, Fighting Fancy we call
her. She sent me a bag filled with things to lift a cancer patient’s spirits.
Heather has a great thing going because I know so many that have received this
bag just when they needed it, mine came the day before my hysterectomy and made
me feel like I was not alone, like someone was actually thinking about me that I
have never met. It made me feel stronger. Please check all the great things
this inspiring young woman has done! http://fightingfancy.com/
Then came an email from Jill in Massachusetts. “I have an
idea” it said. Well you know me and ideas, I told her to call me a.s.a.p. She
thought the bags were inspiring, too. We talked and talked and talked some more
and came up with lots of ideas. In talking, we found our lives, stories, and
values to be very similar and knew this was the making a beautiful
relationship. After listening and talking it over with her with excitement she
asked if I was in. I said “OH HELL YES I AM”.
We have joined forces to create “BRAVERY BAGS”. We will be making
bags filled with water bottles, pillows, a tee shirt, and little things to lift
spirits of those fighting the battle in our own communities! To start off they will be delivered by Jill and I in our communites, but who knows where this will lead.
We have chosen to not just sit by and wait as women and men
are still BATTLING breast cancer. Neither one of us is a scientist or has any
desire to get into research. We want to help people in our own community, to
show them that some random person not only gets it, but is thinking of them.
We are both having a fundraiser in April 11th to
raise money for these bags and will continue to have other fundraising events
at the same time. We are planning to take “My Journey Through the Lumps” to the
Boston area in July. We’ll have community events where children help make the
bags and paint rocks with words like COURAGE on them. We will to deliver these
bags to our local cancer centers by June. We are planning on taking donations, 501 is in
effect. We are PLANNING so much!
I could not be
happier to be working with Jill. She is fabulous! Here is her story…..
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Jill rocking the shirts that will be in the "Bravery Bags"
My name is Jill Greblick and in June of 2012 I
learned I carry the Breast Cancer gene (BRCA2) which means I am at high risk (87%) for getting
breast cancer and (30%) for getting ovarian cancer. Folks in my position have 3
choices....1.) do nothing, 2.) get screened every 6 months or 3) have
prophylactic surgeries to get rid of "at risk" tissue. I am not a
person to wait and see so I decided to move forward with the surgeries. As a
preoperative screening I had a mammogram which showed "something". I
had a biopsy and it was all clear. In July, I had a breast MRI which was all
clear. On September 24 I had my ovaries removed and the pathology showed
atypical cells so the surgeon was glad I had them out. On October 18, I had a
bilateral mastectomy directly into reconstruction. Yes, I have implants. I went
back to my breast surgeon on November 1 and she walked in the room as white as
a ghost (holding my pathology report). The next words out of her mouth were,
"Jill, you have cancer." Wow...we didn't expect that...My
husband didn't even come with me to the appt. The rest of that appointment
was a blur because unless you have heard those 4 words you can't imagine the
feeling. Anyway, when you have cancer written in your chart you go to another
place medically. Off to my oncologist (Dr. Morganstern) I go. Both he and Dr.
Duggan agreed, that we needed to see if the cancer has spread to my lymph nodes
(BTW the cancer was a very aggressive form (HER2+).....the fact that in July
the MRI was clear and in October I had an invasive form of cancer speaks for
itself). On November 26, I head back to the Operating Room for a lymph
dissection. 9 nodes were taken out and they were all clear. Dr. Morganstern
states several times in our visits that I was very lucky I did the surgeries
when I did because in a couple of months later and we could be in a very
different place. While I was going through my surgeries, I took
comfort in some items my friends gave me. I loved the fuzzy socks, the
pretty necklace, the functional water bottle that all my friends gave
me. I also, loved a small pillow (that was made for me by my
girlfriends mother) that I could place anywhere to give relief from body
parts rubbing against each other. I was using it at 3:00 AM and thought
everyone should have some items that bring them a bit of relief while
they go through this, and Bravery Bags were born. After going through the
hardest thing I have ever been through I realized that I didn't want to go back
to my old life....I knew I wanted to give back to others coming after me.
I read, Ann Marie's Stupid Dumb Breast Cancer Blog and realized she had the
same feelings I did. I emailed and asked her if she wanted to
become partners and Stupid Dumb Breast Cancer Bravery Bags were born! The
SDBC Bravery Bags will contain items that will bring comfort: fuzzy socks,
"chick flick" DVD, a blanket, note cards, a water bottle, a "small
pillow" etc. No woman who receives our bags will ever feel alone....
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Fuzzy socks and chick flicks sound like excellent ideas to me. Good luck with the bravery bags. It will be a great surprise (& distraction) to someone going in and feeling alone. ~Catherine
ReplyDeleteYay! So cool you two ladies are doing this. So awesome. xo
ReplyDeleteTrying to spread the word to many others about my mom and my journey to the Susan G. Komen 3 Day walk in Boston this year! I am blogging our journey of fundraising and reaching out to the community for support!
ReplyDeletejourneyforjugs.blogspot.com
If you or anyone you know has any ideas, let me know! I am open to many new suggestions on what more can be done. This is a cause very near and dear to my heart; my grandma is a breast cancer survivor. She had breast cancer in her late 40's and had to have a mastectomy. She is now in her 80's and is one of the strongest women I know!
I am looking for input from real women fighting this disease and your story is raw and open and honest and that is something I truly can appreciate and learn from!
Disease Click is a best website about disease and health tips its all about disease and his treatment in this web add lots of information about disease.
ReplyDeleteHi, I am scientific media editor at Curetalk, a medical research blog. You have an amazing blog and I would like to interview you for our patient platform. Do drop me a line, priya@trialx.com
ReplyDelete